Isaiah 7.17 : Updates, etc.

 The blog is back,  and you know what that means, another surgery.  I rarely update this anymore as the day to day is pretty much the same and very busy with my work and 4 kids.  Rachel doesn't like to write here but I still like to do this from time to time to update people who've been following along with Isaiah's story we may not be facebook friends with, etc.   The whole crew squinting in the sun    First a little game of catch-up. Since the midface 4 years ago Isaiah's been doing pretty good.  He's been breathing much better overall, even had a sleep study with no apneas! We still have ups and downs, but most issues have been relatively minor and not surgical.   One of the bigger things we've been dealing with behavior issues mostly as of late.  Some of it is the autism and some of it is related to the scarring he has in his frontal lobe from his first cranio surgery at 7 weeks old.  We've been on a carousel of different meds, been through countless hou

I haven't updated in forever, and that's a good thing.  Nothing major to report, oh wait, yeah we had another kid in August of 2018 so I guess there's that.  (Isaiah's holding Annabelle in the picture above)  What I really mean to say is that nothing major has been going on with Isaiah surgery wise which has been good.  There's another cranial vault in the next year or two and maybe some finger straightening / bends at the same time, but not imminent.  (Famous last words right?) There's been a dearth of updates to this for over 2 years, but  I don't know that our daily lives are that worthy of constant blog posts, and anyways who really blogs that much like this these days?  I'm just posting for those few who still check in here on the occasion to let you know we're all still here and to keep this thing alive until the next time we need to provide any updates on Isaiah's surgeries. Thanks, BK

Yes its July, and yes Isaiah has his first day back at school.  You can tell he's not too happy about it!  I think we're the earliest back to school I've ever heard of.  Seriously, who goes back to school in July already?!?!?  He does have 3 full week long breaks during the school year which are nice, but I wouldn't mind a little longer of a summer.... One of these days I'll get a good before and after comparison up here, but that would actually require me to have some free time....

We're home safe and sound.  I'll do a bigger update here sometime this weekend with some good before / after shots hopefully.

Right after they took the bar off in preop holding The rest of the trip to Dallas was pretty smooth.  Yesterday we got some good news that his ears looked like they were healing well and that he wouldn't need another set of tubes put in when they take the halo off.  We also got to meet up quick with another Apert family, the Clarks, who were here from Ohio to have their daughter Haylee's halo removed as well.  Its always great to meet other families and they were nice enough to give Isaiah another gift of legos which he had to build almost immediately of course! This morning we checked into the hospital at 7am, by 8:15 we were in the preop holding area and got a glimspe of things to come when they took off the front bar.  All in all it was a pretty quick surgery and he was in the recovery room by 9:45.  It was there we got to see Isaiah 4.0 for the first time with no halo!  He was still pretty out of it, but was asking for his ipad soon enough.  Even though we've

Getting ready to leave home I had meant to update things earlier, but we've had a little too much drama the last few days.  Isaiah fell on Thursday and Friday and knocked his halo loose a bit .  Besides the temporary pain he had a good amount of blood oozing out of the pin sites on the sides of his head and it sent us into a panic thinking we got so far along and then messed everything up.  We called the on call physician and they talked us down a bit but Rachel and I have been in a pretty stressed out state since the falls and will be until the halo comes off on Tuesday and we know everything is okay.  Everything should be pretty much set by now, but we can't help but be sick to our stomachs about the whole situation.  Isaiah's acting fine for the most part which is good, but your prayers are appreciated for calming our nerves and that all is still well with Isaiah. In Vicksburg, Train in the background Tonight I'm writing from our hotel room in Shreve